The Lewis Jeynes Fund

Helping Other Children

We do what we love

Where possible, limited by the funds available and only if they meet the strict criteria of the Fund, we do try and help other children to purchase equipment, respite care and buy presents for particularly brave and amazing children.

  • The application must be for a child under the age of 18 years
  • The applicant must be living in the UK
  • The applicant must have a medical diagnosis of Batten Disease or another recognised terminal condition (we may ask for confirmation)
  • We do not refund for items or services, the Fund must be able to buy the item or pay for the service directly
  • We retain the right to refuse any application

What does the Fund get up to ?

Helping children however we can

Buying presents at Christmas

We try and buy different children presents at Christmas each year, mainly to bring smiles to family faces.

Helping with medical supplies

Where the value is less than £100 we try and help pay for medical supplies not covered by care or benefits payments.

Specialist Equipment

If you need a small piece of specialist equipment, we may be able to purchase that for you.

Helping with travel costs

If you are struggling to pay for travel costs to attend specialist appointments, we can help.